BO Community

Link Directory

Links and resources about Bronchiolitis Obliterans

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102 link(s)

Associations

23
ALIBER - Ibero-American Alliance
Spanish
Alliance for Rare Diseases
French
American Lung Association - Bronchiolitis obliterans (Popcorn Lung)
English
Association 1901 Hope For Gabriel
French
Asthma + Lung UK
English
Asthma + Lung UK - BO in Children
English
Asthma + Lung UK - Bronchiolitis obliterans
English
ATUERU - Uruguay (Rare diseases)
Spanish
European Lung Foundation - Rare Lung Diseases Children
English
EURORDIS - Rare Diseases Europe
English
FADEPOF - Argentine Federation of Infrequent Diseases
Spanish
FENAER - Bronchiolitis obliterans
Spanish
GAAPP - Stichting PIBO (international profile)
English
Hope For Gabriel Association
French
Les Cols du Souffle
French
Lung Transplant Foundation - BOS
English
Lung Transplant Foundation - Chronic Rejection BOS
English
NORD - National Organization for Rare Disorders
English
Quebec Lung Association - Bronchiolitis obliterans
French
Respifil — Rare Respiratory Diseases Health Network
French
Starke Lunge (Strong Lung)
German
Stichting PIBO (Netherlands)
Dutch
Stiftung Starke Lunge
German

Private groups

1
Bronchiolitis Obliterans - Facebook Group
English

Social network

3
Fecher - Chilean Federation of Rare Diseases
Spanish
Instagram Bonquiolitis Obliterante Spain
Spanish
RareConnect
English

Professional network

10
AP-HP Hôpital Robert Debré - Centre RespiRare (Paris)
French
AP-HP Hôpital Trousseau - RespiRare Center (Paris)
French
ATS - American Thoracic Society
English
ERS - European Respiratory Society
English
ISHLT - International Society for Heart and Lung Transplantation
English
RespiFIL - French Network for Rare Respiratory Diseases
French
SBPT - Sociedade Brasileira de Pneumologia e Tisiologia
Portuguese
SEPAR - Sociedad Española de Neumología
Spanish
SER - Sociedad Chilena de Enfermedades Respiratorias
Spanish
Starke Lunge - Academic Partners
English

Medical research

48
Acta Paediatrica - French Cohort RespiRare PIBO 2025
English
Acta Paediatrica - PIBO France 2025 cohort (full article)
English
Anales de Pediatría - BO en España
Spanish
ATS Journal - Bronchiolitis obliterans after lung transplant
English
Blood Advances - Belumosudil BOS (clinical study)
English
Canada Respiratory Journal - PIBO update 2025
English
ClinicalTrials - PIBO clinical trials
English
ClinicalTrials.gov - BO
English
DUMAS - Evolution of BOPI patients (France)
French
e-CEP - PIBO with BPD, Rouen France (2025)
English
EM Consulte - Post-infectious BO (article FR)
French
ERS - Clinical Practice Guideline BOS
English
ERS Congress 2024 - Outbreak PIBO post-adenovirus (abstract)
English
European Journal of Pediatrics - IVPM + IVIG PIBO (Turkey 2025)
English
Frontiers in Pediatrics - PIBO risk factors (meta-analysis)
English
GARD - BOOP / COP
English
GARD - BOS (Post-transplant syndrome)
English
GARD - Bronchiolitis obliterans (NIH)
English
GARD - Bronquiolitis obliterante (Spanish)
Spanish
Google Scholar - Bronchiolitis obliterans
English
HAL Science - PIBO respiratory epithelium (pilot study)
French
Interstitial Lung Disease
French
ISHLT - Diagnosis and Management of BOS (guideline)
English
ISHLT - Thoracic Registry Lung Transplant Report
English
Jornal de Pediatria - Bronquiolite obliterante pós-infecciosa em crianças (PT)
Portuguese
National Jewish Health - Bronchiolitis
English
NIH> National Library of Medicine
English
Orphanet Journal - Pediatric BO (pulsotherapy)
English
Pediatric Pulmonology - Effectiveness of methylprednisolone IV PIBO (France 2025)
English
PMC - BAMA diet (Budesonide + Azithromycin + Montelukast + Acetylcysteine)
English
PMC - Budesonide + Montelukast + Azithromycin diet (children < 5 years)
English
PMC - Current research on pediatric BO in Brazil
English
PMC - FAM therapy (Fluticasone + Azithromycin + Montelukast)
English
PMC - PIBO Post-adenovirus outbreak Ljubljana/Trieste 2025
English
PMC - PIBO post-transplant lessons (Yu, Korean J Pediatr 2015).
English
PMC - PIBO Workshop Report 2020 (Jerkic et al.)
English
PMC - Post-viral BO in children: a rare and devastating disease
English
PubMed - BO research
English
Pulmonology Journal - Bronquiolite obliterante pós-infecciosa (Portugal)
Portuguese
Raras.org — Bronchiolitis obliterans
Portuguese
RMMG - BOPI: importância do diagnóstico precoce (Brazil)
Portuguese
SciELO - Bronquiolitis obliterans (PIBO children)
English
SciELO Brasil - Bronquiolite obliterante pós-infecciosa
Portuguese
Scielo Chile - BO and SARS-CoV-2
Spanish
ScienceDirect - Pediatric PIBO (article 2025)
French
ScienceDirect - PIBO clinical evaluation and long-term results (Turkey, 114 children)
English
ScienceDirect - Post-viral PIBO 2024 (Chanez et al.)
English
theses.fr - e-PIBO study (Marseille, 2023-2026)
French

Documents

14
Guía clínica Chile (Vega-Briceño, 2009)
Spanish
Lemedecin.fr - Bronchiolitis obliterans
French
NIOSH / CDC - Flavorings-Related Lung Disease
English
OPA Pratique - BOPI: a rare pathology to be aware of
French
Orphanet - BO Syndrome (EN)
English
Orphanet - Bronchiolitis obliterans (FR)
French
Orphanet - Non-transplant bronchiolitis obliterans
French
OSHA - Diacetyl and Flavorings
English
RespiRare - Bronchiolitis obliterans not related to transplantation
French
SAP - BO posinfecciosa clinical guide (Argentina)
Spanish
Starke Lunge - BO therapeutic principles
English
Starke Lunge - Complementary therapies
English
Wikipedia - Bronchiolitis obliterans (EN)
English
Wikipedia - Bronchiolitis obliterans (FR)
French

Financial aid

2
SSA - Compassionate Allowances (Obliterative Bronchiolitis)
English
SSA - POMS Obliterative Bronchiolitis
English

Other

1
Rare Disease Day
English